The Abigail Alliance » Announcements http://abigail-alliance.org/blog ...thoughts on our fight to save and extend lives Wed, 28 Jul 2010 03:40:26 +0000 en hourly 1 http://wordpress.org/?v=3.0 Continuing our fight for the ACCESS Act! http://abigail-alliance.org/blog/continuing-our-fight-for-the-access-act/ http://abigail-alliance.org/blog/continuing-our-fight-for-the-access-act/#comments Fri, 22 Jan 2010 16:10:36 +0000 Frank Burroughs http://abigail-alliance.org/blog/?p=33

With my fingers crossed, it looks like we are close to getting the ACCESS Act reintroduced in Congress and having help getting more momentum for adding more cosponsors this time around.

The Abigail Alliance has become part of a rare disease patient advocacy lobbying group put together by the Kakkis Foundation. This will help patients and help get more traction for the ACCESS Act.

Also recently, the Abigail Alliance has developed a closer relationship with BIO (Biotechnology Industry Organization). We are a significant and well received part of a project at BIO looking into ethical issues regarding earlier access to promising investigational drugs.

]]> http://abigail-alliance.org/blog/continuing-our-fight-for-the-access-act/feed/ 1 New site design! http://abigail-alliance.org/blog/new-site-design/ http://abigail-alliance.org/blog/new-site-design/#comments Mon, 14 Sep 2009 21:19:23 +0000 Jason Yeh http://abigail-alliance.org/blog/?p=13

We are pleased to report that work is underway on a new design for our humble site. Not everything is finalized but take a look at some sneak previews… exciting!

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