Continuing our fight for the ACCESS Act!
With my fingers crossed, it looks like we are close to getting the ACCESS Act reintroduced in Congress and having help getting more momentum for adding more cosponsors this time around.
The Abigail Alliance has become part of a rare disease patient advocacy lobbying group put together by the Kakkis Foundation. This will help patients and help get more traction for the ACCESS Act.
Also recently, the Abigail Alliance has developed a closer relationship with BIO (Biotechnology Industry Organization). We are a significant and well received part of a project at BIO looking into ethical issues regarding earlier access to promising investigational drugs.